Sorry for our absence…

Sorry for our absence…

Things have been like super hella crazy around here, and thus our site has been eerily silent. I don’t even know where to begin to describe what our life has been like for the past two months. Sooooo much has happened that it’s impossible to think of just where to start. We hit milestones, we went through extreme lows, and then we came out the other end better people.

The biggest milestone?

Logan turned One.

Over the last few months, he’s grown and learned so much, and yet I still feel like with him time stands still, and he’s going to be my baby forever. The way he crawls all over the house makes me so proud, I laugh when my mom calls him “una cucaracha mala”. He can now come up to a tall knee position and is crushing every obstacle course Diana builds for him. We’ve discovered how to bang maracas together, and honestly,  it is the most magical thing I’ve ever seen.

Over the last few months, we’ve also discovered so many new things such as bathtubs, the beach, and plenty of new public outings like aquariums and brunches. We’ve learned how to say da da da, to hold our own bottle, we’ve made so many new friends, and we’re beginning to experiment with soft solids.

Making huge progress.

In so many ways I feel like each day is the same and we are getting nowhere. Still no clapping, still no waving, still no walking. But then I think of how far he has come, how he can now respond to simple words such as “up” and “come”, how he loves playing with his brother, how he can successfully bang items together… and don’t even get me started on his feeding accomplishments!

The more days go by, the prouder I become of my little wolverine. He’s accomplished so much, and likewise given me so much to learn and grow from. He’s quite possibly the best decision I have ever made, and the most fun I have ever had.

Mom

Speech Therapy Evaluation

Speech Therapy Evaluation

I feel like lately, it’s just one doctor, and one evaluation, and another doctor, and another evaluation… referrals, prescriptions, and doctor visits. Round and round we go. I’m drowning in them. But that’s what this stage of my life is going to be like, right? I knew to expect this and I knew that at this stage, I would be dedicating myself to this sole purpose. For his betterment, because at the end of the day, when you’re a mom, everything you do is for your kids, and to put them forward.

Speech therapy, but my kid doesn’t even speak? I didn’t get it? I didn’t understand how he could already have a delay in an area I didn’t even know to begin practicing. But then I think back to Evan, and what that was like. How he communicated with me at this stage, and the radical difference I see in the development of both my sons.

Logan turns 1 at the end of this month, and there are many areas within his communication skills that he’s falling behind on. There was so much information I absorbed in the 60 minutes that Logan was evaluated.

At first, came the usual onslaught of questions about Logan, from pre-birth to birth, to first months… and so on until where we are today. We’ve been working hard with Logan’s ITDS to have him combine consonant syllable sounds repeatedly, for months, and so far we have no success.

And yes, we know how to tell what Logan wants when he wants it because we know how to distinguish his cry, but that’s about it. Otherwise, his communication skills with us are very minimal or like nil to none.

But I didn’t think anything of this. Why? Sometimes, I forget Logan is turning one because his milestones are telling me my baby is 6 or 7mo. old. He’s just learned to crawl, were just beginning to explore solids, and we can finally sit unassisted on our own. But we still have a long way to go in terms of keeping up with the delay.

He has begun to have exploratory skills in the 6-9mo. levels. However, in his own range, he scored very minimal scattered skills. There are certain areas and skills where he does have full competency, like in the 0-3mo. range.

Well, thank god!

But ask me if Logan can point out his momma?

-Nope.

Or does he understand simple words?

-Nope.

He also has difficulty bringing his arms together repeatedly at mid-line. In other words, no matter how hard we practice, he still doesn’t clap. And listen, I practice that clap…. every. day.

Every. Damn. Day.

We continue to practice all kinds of skills daily, as we incorporate books, photos, and images to help him start recognizing the language. We encourage hand signals like “up” and “bye-bye”, and what’s most important is that we continue to work as a unit, making sure Logan gets the daily stimulation he needs.

But, hey, were working on it! And eventually, as with all things, he will get there.

And that’s the most important thing that I have to keep reminding myself, and telling myself… repeatedly.

He will get there.

All things in life are a phase, and this too shall pass.

After our evaluation, the therapist is suggesting we go full steam ahead and do 30 minute sessions, 3x a week.

We are currently doing PT & OT for a combined total of 3 hours a week, with our latest recommendations for feeding and speech, we’ll be doubling that number to 6 hours a week.

But this is for him, his betterment, and his benefit, and really there isn’t anywhere else I’d rather be.

 

-JG

 

 

Feeding Therapy Evaluation

Feeding Therapy Evaluation

I like to joke that you would never guess Logan ate from a feeding tube for the first 5 days of his life. He’s a chunky monkey that likes to eat everything and anything you put in front of him. And if you’re eating something, you best believe, that yep you’re going to learn to share! So naturally, when feeding therapy was suggested, I was a little confused?

 

This fat guy?

He’s a champ at taking down his bottles lightning fast, which has come to require that we cut open the nipples (old Cuban traditions) — so that he can huff down the liquid mud we make his formula into. He’s basically drinking his oatmeal out of a bottle.

We even, maybe occasionally put his compota’s in there as well.

Cuban traditions die hard.

He also eats a whole bowl of Abuela Milly’s homemade purees, which contains all kinds of delicious goodness. Beans, meat, chicken, potatoes, rice, vegetables, spinach… you name it, he eats it.

Apparently, cutting the nipples is frowned upon by health professionals, and it’s time I let Logan learn to play with his food. Yes, it’s great that he eats well, and is of a healthy weight. But no, there are certain milestones he should be meeting which he is not. Primarily, we need to build the strength of the muscles within his jaw and cheeks, to give him the correct stamina he needs to chew. Right now, he’s a bit lax in that department.

Ask me if Logan can hold his bottle?

-Nope.

Can he chew soft solids?

-Nope.

Does he chew on puff cereal or children’s teething cookies?

-Nope.

-Can he drink thin liquids from a bottle?

-Again, nope.

These were things which were worrisome, but I didn’t think too much on. After his Feeding Therapy Evaluation, though, there are a few changes we’ll need to start making to his eating routine. Starting with new bottles, {eye roll here}. Ask me how many times I’ve heard this schpeel lol

The recommendation: we’ll be doing feeding therapy 2x for 45 minutes sessions.

 

Follow along to get updates on how he does!

Physical Therapy, 6mo. later

Physical Therapy, 6mo. later

We started physical therapy when Logan was about 5 months old. At the time, I thought Logan was rockin’ it when it came to meeting his milestones. He was doing tummy time great, and he was rolling from prone to supine (I’ve picked up a few terms over these sessions lol), holding his head up like a champ and all! However, after the initial evaluation, I quickly learned just how mislead I was.

Whhaaaa?

Yes, Logan was doing great in meeting his milestones, but he was cheating and using disorganized body movement. Something I was completely unaware of, as I had no clue what to look for. Diana, his physical torturer {ahem!} I mean… therapist, quickly filled us in on how Logan was overcompensating his movements by using extension to accomplish most of his actions.

tsk. tsk. tsk.

Not like that little Logan.

We came into physical therapy doing 3 sessions a week for 30-minute sessions. When we first started, Logan was using his shoulders to hold up his head and neck (looking like the Uncle Fester all day) and was preferring to utilize extension to accomplish his rolling. These were the first movements we corrected, as Diana began to work with him, and cue-ing him towards the correct movements.

We experienced A LOT of crying during these first initial sessions.

But we worked at it. Every day. We worked not only at therapy 3x a week, but we also worked as a unit at home, intermittently taking turns, ensuring little Logan was practicing correct movements. All. The. Time.

I began to ask excessive questions during our sessions with Diana. I wanted to know as much as I could about what he was learning to do, with what muscles, and how it would help him further his development.

“And what was that word you used?” “How can I do this at home” What if he does this?” “How do I correct this movement?” “What if he does this movement?” “He does this a lot, is that normal?”

I feel like that is my number one question:

Is that normal?

but what’s normal?

Because I’m not, and with him I only see perfection. 

Today, at the 6mo. PT re-evaluation I was able to show Diana how I’m learning to crawl on my own. I came into therapy 6 short months ago, unable to hold my own head up properly. But with constant support and dedication from my family and the amazing people at  Nicklaus Children’s Outpatient Therapy center, now? Now I can sit completely unassisted, I can roll all over the place like a crazy animal, and I’m finally beginning to learn to crawl.

Mommy is so proud! Not only of the progress I’ve made, but also of the way I continuously learn. The way I can pick up cues quickly, and continuously work at these movements, even when no one is helping me. Sometimes, mommy catches me in my play pen practicing weight baring, and she can’t help but laugh.

Physical therapy is quickly becoming one our favorite ways to start the moring. ♥